UK HSP Support Group AGM - Can you help?

At the weekend, wearing my 'chair' hat, I hosted the 5th digital AGM of the UK HSP Support Group. 

We had around 30 members attending, and covered all the usual matters. However, there was one important difference. The support group needs people to come forwards to be trustees. We specifically need one person to come forward and be our treasurer, and another person to come forward and be our secretary. Without new trustees we have have to close the charity.

People do not have to have HSP to help us, we need two things:

• A passion to be able to help
• Dedication to fulfil the responsibilities of the role.

If this sounds like you and you want to help, or if this sounds like someone you know please get in touch. You can leave a comment here, or contact the group by e-mail, post, telephone or through our social media channels.

You can watch all the AGM on our YouTube channel - https://www.youtube.com/watch?v=UZMv2pLRJ7M

Hereditary Spastic Paralympians 2024

 As we are coming up to the Paris 2024 Paralympics, I have had a quick look to see if I can find athletes who have HSP.

I started by looking at my post from the Tokyo Paralympics, and pleased to find that all but one of the athletes from there are also appearing in Paris. I have also done a search and found other athletes with HSP who are appearing.

I am busy preparing for the UK HSP Support Group AGM, which is on Saturday. So, this post is a quick list of the people I have found. Most of these athletes seem to have active instagram pages, so that has been my social media link of choice to put here.

Evan Austin (USA) https://www.instagram.com/e_a_swim/ 

Rebecca Hart (USA) https://www.instagram.com/rebeccahart136/ 

Katie Morrow (GB) https://x.com/katiemorrow56 

Jade Atkin (GB) https://www.instagram.com/jadeatkin10/

Roman Polianskyi (Ukraine) https://www.instagram.com/roman_alexandrovi/

Toni Ponce (Spain) https://www.instagram.com/toni_ponce/ 

Laila Suzigan (Brazil) https://www.instagram.com/lailasuzigan/ 

Daniel Mendes (Brazil) https://www.instagram.com/danielmendess6_/

Austin Smeenk (Canada) https://www.instagram.com/austinsmeenk/ 

Dayna Crees (Australia) https://www.instagram.com/daynacrees__/ 

Arianna Talamona (Italy) https://www.instagram.com/talamona94  

Milena Surreau (France) https://www.instagram.com/milena_surreau/ 

Lisa Bergenthal (Germany) https://www.instagram.com/lisa.bthal

Michael Volter (Germany) https://www.instagram.com/michvolt10/

If anyone knows other athletes with HSP in the Paralympics, please let me know!!!

(25th August - Merci to friends in France saying about Milena.)

(30th August - Thanks to friends in UK for saying about Jade, and Danke to friends in Germany for saying about Lisa and Michael)

(1st September - review of schedules shows that Hallie Smith isnt competing this year)

(22nd September - Thanks to friends in Brazil for saying about Daniel Mendes)