OK, my first linky post...
There are a number of support groups and organisations that can help people with the condition:
UK: http://www.hspgroup.org/
Europe: http://www.hsp-info.eu/
USA: http://www.sp-foundation.org/
Australia: http://www.hspersunite.org.au/
Germany: http://www.hsp-info.de/
I've limited myself to those in English, and this is the result of only a brief web trawl. It is my intention to add links to medical and research sites in the future, but I'm happy to expand this list and would welcome links to any other support groups, in any language.
This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74.
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Saturday, 6 November 2010
Wednesday, 3 November 2010
Some commonality
I was chatting with my mum the other day. She had been to see her physiotherapist, and was telling me about some of the exercises that she had been recommended to do - stomach crunches. This turns out to be quite similar to some of the exercises I do at Pilates, particularly going into imprint.
Whilst I'm pleased to find out that we're getting some degree of commonality from fairly separate areas (in different parts of the country too), I cant decide if I am surprised at this commonality or not.
Whilst I'm pleased to find out that we're getting some degree of commonality from fairly separate areas (in different parts of the country too), I cant decide if I am surprised at this commonality or not.