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Sunday, 24 November 2024

2024 AGM - HSP diagnosis and treatment

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One of the presentations associated with the UK HSP Support Group AGM was Estelle Marshall presenting the results of her Masters dissertatio...
Wednesday, 30 October 2024

Symptoms Update - New Shoes!

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Just a brief post today. I have just started wearing another new pair of shoes. This means that the ones I got to replace the previous set h...
Friday, 25 October 2024

Prevalence of HSP in England and Northern Ireland

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One of the presentations after the 2024 UK HSP Support Group AGM covered the epidemiology and prevalence of HSP in England and Northern Irel...
Wednesday, 25 September 2024

HSP on Podcasts

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HSP features in two different podcasts, which you might be interested in listening to. Both are episodes of the Rare on Air series, created ...
Sunday, 22 September 2024

More on Paralympics

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 After the Paralympics finished I had worked out the number of medals for all of the people with HSP competing in the Olympics. I also put a...
Tuesday, 27 August 2024

UK HSP Support Group AGM - Can you help?

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At the weekend, wearing my 'chair' hat, I hosted the 5th digital AGM of the UK HSP Support Group.  We had around 30 members attendin...
Thursday, 22 August 2024

Hereditary Spastic Paralympians 2024

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 As we are coming up to the Paris 2024 Paralympics, I have had a quick look to see if I can find athletes who have HSP. I started by looking...
Tuesday, 30 July 2024

UK HSP Support Group AGM Preparations

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I'm not quite clear how the end of the month has arrived so quickly! In the last couple of weeks I have been fairly busy getting the fir...
Thursday, 25 July 2024

Symptoms Update - Posture and Balance

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I realised (via some conversations) that my walking style has progressed to me looking down at my feet whilst I'm walking. This is not v...
Wednesday, 19 June 2024

UK General Election 2024

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The table below summarises key points with the potential to affect people with disabilities and health conditions. My summary is:  Voting fo...