I was having a bit of a browse looking up various HSP info, and I found this one: http://emedicine.medscape.com/article/306713-overview. I like this because (a) it has lots of info presented and (b) the info it gives is written in a style I like. Therefore, it may also appeal to any regular readers here? There are lots more medical terms i need to look up and understand as well.
I also found this page: http://ghr.nlm.nih.gov/condition/spastic-paraplegia-type-4 which gives plenty of opportunities to get side-tracked clicking link after link after link...
This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74.
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Saturday, 25 June 2011
Friday, 10 June 2011
Symptoms Update, One Year In
Hi.
I realised that this post marks the start of my second year blogging, the first post being up in June 2010. So, a brief review of what I've discovered, and a comment about my symptoms.
In the last year I've found that there is a fair wedge of information about the condition out there, and that really the condition is a collective name for several different things. There's still lots that I dont know and so I endeavour to keep on searching out more information.
In terms of my symptoms, I posted a month or two ago that I've spotted my muscles becoming tight more frequently, and since then I've noticed this more often, and I'm having to 'force' my muscles to relax more and more. Also, I've found the last couple of weeks at Pilates more difficult than previously, and I wonder if I am now in the beginnings of the "Rapid Onset" of the condition proper. I feel that this might mean more symptoms updates from me going forwards.
I realised that this post marks the start of my second year blogging, the first post being up in June 2010. So, a brief review of what I've discovered, and a comment about my symptoms.
In the last year I've found that there is a fair wedge of information about the condition out there, and that really the condition is a collective name for several different things. There's still lots that I dont know and so I endeavour to keep on searching out more information.
In terms of my symptoms, I posted a month or two ago that I've spotted my muscles becoming tight more frequently, and since then I've noticed this more often, and I'm having to 'force' my muscles to relax more and more. Also, I've found the last couple of weeks at Pilates more difficult than previously, and I wonder if I am now in the beginnings of the "Rapid Onset" of the condition proper. I feel that this might mean more symptoms updates from me going forwards.