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Sunday, 30 January 2022

Symptoms update - muscle pain

 A relatively short post for today.

Muscle Pain

Every now and again (perhaps once a month or so) I get some pain in my calf muscles near the time that I wake up, which lasts for a few seconds. The muscles feel like they contract really tightly and I need to flex my ankles and/or my knees to stretch the muscles out and stop the pain. When I then get out of bed and stretch them more, and start moving around, the muscles go back to normal. There is a residual small amount of discomfort lasting until after I get more active and get the muscles to work more.

Bladder medication - Oxybutynin 

I noted in November that I've changed bladder medication. The messages from my bladder to my brain are different. The messages that get through now suggest that my bladder is approaching full for more of the time. With the tolterodine I would have needed to go to the toilet when getting these messages, but with the oxybutynin I've not yet worked out when the 'you must go to the toilet' point is - so I am sometimes going to the toilet without being able to go, or with only a small amount of urine coming out.  


Sunday, 2 January 2022

Topics covered by my surveys

I have just completed an update to the pages of my blog. At the top of the page for my survey reports I have now added the following table, which should help people find details about specific topics of interest.

I have put ticks to show what is being covered in my current 2021 survey, and once that analysis is completed and written I will update these.

You can click each tick to take you to the post for that survey.

Year

2013

2014

2015

2016

2017

2018

2019

2020

2021

Activities of Daily Living

ü

Bladder

ü

ü

Bowel

ü

Coronavirus

ü

Cure for HSP

ü

Depression

ü

ü

ü

Disabled Y/N?

ü

ü

ü

ü

ü

Employment

ü

Exercise

ü

ü

Fatigue

ü

Frequency seeing professionals

ü

Grief/Stigma

ü

Home modifications

ü

Life with HSP

ü

ü

ü

Lifespace\Distance of travel

ü

Medication

ü

ü

Misdiagnosis

ü

ü

Mobility

ü

ü

ü

ü

ü

ü

ü

ü

ü

Multiple Long Term Conditions

ü

Needs

ü

OXPAQ

ü

Pain

ü

Quality of life

ü

Resuorces/ Information

ü

ü

ü

Sleep

ü

SPRS questions

ü

Standing from chair

ü

ü

Supplements

ü

Support groups

ü

Surgery

ü

Symptom tracking

ü

Symptoms

ü

ü

Walking

ü

Walking distance

ü

ü

ü

ü

ü

ü

Wellbeing

ü

ü

ü

ü

ü