Symptoms Timeline

Symptoms

This table shows my symptoms changing over time, for those that like to see these things. Last update 1st Jan 2024.

Columns are:
Year: Which year this is
Symptoms: a brief summary of the years symptoms/change
Appoints: number of HSP appointments in the year
Stretches: number of and mins duration of stretches per day

Antis pasticity: dose of antispasticity medication, per day
Bladder: dose of bladder medication, per day

Year	Symptoms	Appoints	Stretches	Anti spasticity	Bladder
1970's	None	-	-	-	-
1980's	Difficulty sitting cross legged & in a canoe	-	-	-	-
1990's	Tripping on flat surfaces	-	-	-	-
2000's	Posture: knees slightly bent. Bladder frequency	-	-	-	-
2008	-	1	-	-	-
2009	-	3	-	-	-
2010	Some tense leg muscles, Neurologist: Mild spasticity	1	-	-	-
2011	Some pins and needles, Foot starting to drag on floor	0	-	-	-
2012	Sitting/standing issues, More rapid shoe wear	0	-	-	-
2013	Stiffer legs, bowel and bladder urgency issues start	0	-	-	-
2014	Use of bannisters, mild depression, mild arm spasticity	5	-	-	1.4mg
2015	Getting on/off bike seat becomes more difficult	9	2*3-8	-	1.4mg
2016	Legs heavier, knees together.	8	2*5-11	-	1.4mg>4mg
2017	Walking slower, distance limited	5	2*5-11	-	4mg
2018	Some fatigue, walking slower, distance limited	2	2*5-11	-	4mg
2019	Similar - bladder, driving, stairs, sleep.	0	1-2*5-11	-	4mg
2020	Walking speed & distance, bladder, bowel	2	1*8-14	-	4>2*2mg
2021	Fatigue! - muscle strength	3	1*15-20	-	2*2>2*2.5mg
2022	Depression, fatigue, muscle strength	4	1*15-20	-	2*2.5mg
2023	Walking - start baclofen. Fatigue, depression.	4	1*15-20	1*10mg	2*2.5mg

My first anti spasticity medication is baclofen. My bladder medication changed in 2016, 2020 and 2021. During 2019 I dropped going from two sets of daily stretches to one set per day.

This table has previously reported Pilates, which I do 1hr per week since 2010 and insoles which I have worn all day 2015-2019 and outdoors since 2020.  

Appointments

This table shows my HSP appointments.

The other details column gives details of the "other" appointments which I have had. A dash means that all appointments are covered by the other columns.

	GP	Neuro	Physio	Orthotic	Other	Other Details
2008	1
2009					3	Genetics
2010		1
2011
2012
2013
2014	2	1			2	Stress, Bowel
2015	0	0	5	3	1	Bowel
2016	1	1	3	1	2	Bowel, Joint Physio/Orthotic
2017	1	0	2	0	2	Bladder, MRI
2018	1	1	0	0	0	-
2019	0	0	0	0	0	-
2020	1	1	0	0	0	-
2021	1	1	1	0	0	-
2022	0	1	0	0	3	GP - AntiD
2023	1	1	0	0	2	GP - Baclofen, Sign off work

Health Data

This table shows a summary of some of the other health data which I track, given quarterly for the last two years and annual before then. Each column is average over the period except for bike distance which shows the total distance.

	Steps (k/day)	Active (Min/day)	Sleep  (h:m/day)	Bike Dist (total km)	Bike Speed (km/h)	Alcohol  (unit/wk)	Weight (kg)
2017	12.4	102	06:12	4267	18.2	12.7	86.0
2018	11.0	106	06:06	4013	17.2	12.8	86.7
2019	13.5	120	05:50	4711	18.5	23.3	88.2
2020	13.4	131	05:55	6081	17.8	16.6	85.5
2021	10.6	101	06:05	3794	17.5	13.9	84.9
2022 Q1	8.5	86	06:17	397	16.5	4.9	90.2
2022 Q2	8.4	81	06:01	243	15.4	13.1	93.6
2022 Q3	9.9	50	06:20	181	15.8	14.8	96.0
2022 Q4	7.7	29	06:20	28	15.6	13.6	94.6
2023 Q1	9.6	29	06:20	0	-	6.3	94.3
2023 Q2	9.8	35	05:55	0	-	17.6	95.7
2023 Q3	9.0	29	06:04	0	-	19.3	96.3
2023 Q4	8.7	30	06:13	0	-	18.6	94.6