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Saturday, 13 June 2015

UK Support Group 2015 AGM

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In one weeks time it will be the UK HSP Support Group AGM in Leamington Spa. I'm looking forward to going and getting some first hand up...
Thursday, 4 June 2015

100,000 genome project

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I saw new reports the other month about the 100,000 genome project in England. Genomics England are embarking on a project to decode and s...
Sunday, 17 May 2015

Recent Research Papers

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Having recently been alerted to the Ampyra/Dalfampridine story, I wondered if I was missing out on anything else. I used the http://www.ncbi...
Friday, 8 May 2015

Exercise Routines

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I've been doing my stretches now for just over 3 months. The main thing to report is that my hamstrings are getting longer. I cant touch...
1 comment:
Thursday, 23 April 2015

Another Physiotherapist Visit

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Recently I had my third trip to the physiotherapist. This is my last appointment for a while. I've got an "open appointment" (...
3 comments:
Wednesday, 8 April 2015

New study of Dalfampridine/Ampyra for use with HSP

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There has just been a new study published which shows that Dalfampridine/Ampyra/Fampridine  has use as a treatment for HSP. The abstract i...
3 comments:
Friday, 20 March 2015

Reflections on 2014 Survey Results

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I was asked my thoughts on my recently published survey results. The thing  which I have found most surprising is the lack of evidence of...
Sunday, 8 March 2015

A trip to the physiotherapist

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I have now been to see a Neurophysiotherapist twice, with another appointment in a month's time. I noted down what I was told in my no...
1 comment:
Saturday, 28 February 2015

2014 Survey Results

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So, it is rare disease day again. I am pleased to publish the results of my second HSP survey which I launched in September. Many thanks are...
5 comments: