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Sunday, 31 December 2023

Review of 2023

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Annual Review: 2023 Once again the end of the year is here, and it is time for my usual annual reflection on thoughts and activities through...
Thursday, 21 December 2023

New Shoes

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2023 marks the first year with two new shoe posts! - Although the post in February was reporting a show swap over in December 2022. This fir...
Thursday, 30 November 2023

2023 AGM: Compassion Therapy

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My other November post covers the second of the two September presentations made for the support groups AGM. Hannah Gilbert talked about com...
Wednesday, 29 November 2023

2023 AGM - Choosing Mobility Aids

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I realise that this post is somewhat later than previous years. There's been a lot going on. One of the presentations given at our AGM t...
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Monday, 30 October 2023

Clinic Visit (by telephone)

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The other week I had my now-annual clinic appointment in London at the National Hospital for Neurology and Neurosurgery. This was a telephon...
Thursday, 26 October 2023

2023 - No survey questions this year

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Hello readers. I have found myself relatively busy in the last few months, and I realise that I have run out of time to plan, organise and t...
Friday, 29 September 2023

Mobility and Driving

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I had a couple of interesting conversations recently with people who were observing me walking, making the observation that I could consider...
Wednesday, 27 September 2023

EuroHSP meeting in Innsbruck

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At the weekend I had the pleasure to attend a EuroHSP meeting in Innsbruck. I was there with my HSP Support Group hat on, along with similar...
Thursday, 24 August 2023

Symptoms update - Baclofen

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I have now started my journey with baclofen. When I visited the HSP clinic at the National Hospital for Neurology and Neurosurgery last year...
Sunday, 13 August 2023

2023 AGM - Spastin recovery in HSP

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On Saturday July 22nd Cinzia Rinaldo gave a presentation to the group about the work that her research group has been doing in Italy. The HS...