After a few months getting used to our new son, and the changes to our family life, I made contact with the genetics team in order to look into the next stage. They recommended that I saw the neurologist, and a referral was made.
The appointment came through, and I went. The doctor observed me walking from the waiting area to the consulting rooms, and observed that I had a "mild bit of spasticity". Confirmation that I am starting to show some signs...
He checked my reflexes, muscles etc. and we discussed my lifestyle and potential plans going forward. He advised that keeping in shape and maintaining a regular exercise program was good, and observed that this was useful advice for anyone. We discussed stretching muscles and mobility, and he recommended going to either a yoga or pilates class.
This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74.
Thursday, 30 September 2010
New Arrival
So, after much waiting, and watching our unborn child growing, kicking and wriggling inside, our newest family member arrived, and turned out to be a lovely baby boy.
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