Orpha.net
A search on "paraplegia" in the "Expert Centres" tab will give a result of clinics/hospitals/organisations which have specific expertise in HSP/FSP
http://www.orpha.net/consor/cgi-bin/Clinics.php?lng=EN
Here are some links to other pages with further details on HSP. These pages do tend to get linked from on other HSP pages, so I tend to regard them as containing something unique.
http://www.wemove.org/hsp/
http://www.ninds.nih.gov/disorders/hereditary_spastic_paraplegia/hereditary_spastic_paraplegia.htm
http://www.rarediseases.org/rare-disease-information/rare-diseases/byID/398/viewAbstract
http://www.nhs.uk/conditions/spastic-paraplegia/Pages/Introduction.aspx
This site perhaps out to be listed in a "communities" page, and provides another route for people to connect up with others with the condition.
http://www.makingcontact.org/index.php?ci=583
Finally, as part of my "getting side-tracked" functionality, I was very interested to read here that HSP can skip a generation:
http://rarediseases.info.nih.gov/GARD/Condition/6637/QnA/21581/Hereditary_spastic_paraplegia.aspx
"In some types of HSP, an affected person can have an unaffected child and an affected grandchild. The most likely way for it to appear as if HSP has skipped a generation, is if the type of HSP has autosomal dominant or X-linked recessive inheritance.
In some conditions with autosomal dominant inheritance, a person can inherit the genetic change that causes the disorder but not develop the condition. This phenomenon is called incomplete or reduced penetrance. If this person's children also inherits the genetic change, they may or may not be affected with the disorder. When a disorder has reduced penetrance, it may appear as if the disorder has skipped a generation if the disorder is only penetrant in the grandparent and the grandchild. Reduced penetrance has been reported for some types of autosomal dominant HSP.
X-linked HSP can appear to skip a generation because an affected male can only pass his X chromosome to his daughters and not his sons. All of his sons will be unaffected and his daughters will be unaffected carriers. For example, if a man with X-linked HSP has a daughter, she will be an unaffected carrier of HSP. This woman's sons each have a 50% chance of inheriting the condition."
Oh, there's a load of other info here too....
