This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74.
Monday, 24 December 2012
Review of 2012
Christmas is coming round again, and I thought I'd just review and summarise what I've discovered this year, and think about how different my symptoms are since the start of the year.
Knowledge:
The main knowledge change this year is the discovery of the PubMed database and the wealth of information out there. I'm starting to digest this information (so there'll be no shortage of bits of info to post about!)
Symptoms:
My main observation this year is that I've spotted wear and tear on my shoes and in the car, so even if I didn't perceive it my symptoms must be getting slightly worse. I've also had the odd comment about 'limping'. I've also found that I need to keep exercising in order to keep my flexibility for a long as possible.
This Blog:
This year I've added an index and started to develop the blog so it's more than a list of posts. I've also started to become an "active" writer than a "passive" one, and I've joined various HSP communities. In the last month or so I've also started tweeting, and I think that 2013 will be the year where I join up my various on-line presences together.
The filming project:
In July 2011 I started my 'filming' project. I paused from that when our second son arrived, after about a years worth of footage. It is my intention to re-commence that project in 2013 as well.
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