UK HSP Support Group AGM

Firstly, it feels like a long time ago that the AGM happened, and I apologise for taking so long to get to writing about it. My next few blog posts will be about the different presentations which we had during the day. This post is about the AGM itself.

The AGM is the official part of the day. As a charity we need to have an AGM each year. The purpose of the AGM is straightforward - to report on the years activities, to approve the accounts and reports, and to elect the trustees.

Activities as usual:

• Welcoming new members to the group
• Meetings
• Member and researcher grants
• Newsletters
• Website and social media

New activities in the year:

• New Constitution (voted in at 2018 AGM) accepted by charities commission
• New Mission Statement written
• Update to website is in progress
• Links to other groups/charities – Initial steps made
• Research – New grant application form for researchers to complete
• Starting to formalise committees to allow people to help more easily
• Group now covers regional meeting costs
• Contributed to consultation on medical cannabis
• Contributed to physical activity in rare conditions collaboration
• Contributed to EuroHSP

So, overall it has been a busy year!

I also talked to many people there about helping the group, particularly around getting people to consider becoming trustees for the group, and more generally around helping in other ways. If there are any readers who would like to help, please read this blog post: https://hspjourney.blogspot.com/2019/06/can-you-help-uk-hsp-support-group.html from a month or so ago.