Friday, 29 March 2024

Fatigue management (symptom update)

Quick post for this evening. I've been spotting that my level of fatigue is gradually growing over time. I'm having to start to adjust my routine a little to take this into account, and this post is just a short note to describe what's happening.

I'm finding that its is quite easy to feel very tired. I'm beginning to have to prioritise what I do on some days so that I'm able to complete those things that are either necessary or that I want to, or in some cases both! This is essentially the beginning of my journey into the spoon theory.

(https://en.wikipedia.org/wiki/Spoon_theory)

I'm lucky that I still have more days than not where I dont have a limit on my number of spoons, but there are a few days where I need to limit what I do.

I've found that my working week pattern is 8hrs on monday and tuesday, 7hrs on wednesday and thursday and 6hrs on friday (total = 36hrs = 4.5 days per week). This means that I have the bulk of my work done in the first part of the week, and if I need to take a bit longer than 6hrs to do 6hrs work on a friday thats no problem.

In the evenings, I'm probably doing a bit less, and I'm using the car a bit more instead of walking so much, which is partly an energy/fatigue issue and partly a speed/practicality issue.

At the weekends, I'm finding that I'm needing to have the odd weekend where I'm not doing particularly much, and I'm doing that to make sure that I have energy available for the other weekends.

The challenge for me is working out which things I should stop doing and which things I should carry on doing. These are hard choices to make. 

Life is also quite busy at the moment, but I know that I should be in a new house before the end of May, which then should allow me to be able to stop worrying about that and focus on being myself again. The worry about houses and similar related activities means that I also find it hard to relax and hard to get to sleep, and these dont help the fatigue.


1 comment:

  1. Hi Adam, just wanted to let you know that I appreciate and can relate to your posts. I was diagnosed with HSP about 5 yrs ago and have been in denial mode since then, but recently I have decided to join and participate in a number of similar groups.
    I have also found that I have decreasing energy levels and had to manage my non-essential activities to make sure I have something left for the important ones. I thought it was due to some changes to my meds recently but hearing you have similar issues makes me think otherwise.
    I like the spoon theory concept and will start using it.
    Keep up the good work!
    Thanks

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