I was browsing facebook the other day, and found a couple of HSP community pages, and this led me on to have a bit of a trawl around to find out if were are any other pages around. This gives another set of links like the support groups, but perhaps a bit more up-to-date and personal? I would welcome any links to other community pages.
Facebook:
http://www.facebook.com/pages/Hereditary-Spastic-Paraplegia-HSP/121279057942990
http://www.facebook.com/pages/HSP-Australia/199236076788479
http://www.facebook.com/pages/HSP-Research-Foundation/137857172915152
http://www.facebook.com/pages/Familial-spastic-paraparesis-FSP/210236818990197
http://www.facebook.com/pages/Hereditary-spastic-paraplegia/132525713451982
Medical/patient community pages:
http://www.rarediseasecommunities.org/en/community/hereditary-spastic-paraplegia/article/hsp-article
http://freyerse.org/
http://www.wemove.org/forum/ubbthreads.php/forums/8/1/Hereditary_Spastic_Paraplegia
http://www.patientslikeme.com/conditions/493-hereditary-spastic-paraplegia
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