I think I've spotted the next part of my symptoms. A look at my shoes shows that the heel is starting to be pushed outwards. I think this means that my gait must be changing. Interestingly it is noticeable on my left shoe more than my right shoe. The effect is slight, and I've had these shoes for a while.
Just thinking, if my heels are starting to poke out, I suppose that my knees must be getting closer together. I base this supposition on the scenario that its a walking thing, each step pushes my weight out and I dont think that my feet are further apart. I cant work out if my toes are pointing in more, and I'll need to do some more observing.
I'll also keep a lookout on my other pairs of shoes, as it's just one pair at the moment.
Also, on a similar front, I've noticed that I now have 'skid marks' on the cill of my car door where my right foot has slid over rather than me lifting it over after sitting down. I've only just noticed these marks, which perhaps suggests that its a fairly recent thing, having had the car for getting on for four years.
Overall, My conclusion is that my symptoms are starting to progress, and my wife has also noticed that my walking appears more difficult when I am tired or carrying heavy weights (3 year old boy sized). I wonder how long I'll be able to claim "no significant symptoms"....
This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74.
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Friday, 15 June 2012
Sunday, 3 June 2012
Researchers - Most published
OK, a bit more number crunching on the papers I downloaded. There are over 2500 researchers who have contributed to the 589 different papers - so that's on average some 4-5 people per paper. A list of 2500 researchers would be a silly thing to put here, so I've limited as follows:
* Anyone who has been an author on 10 or more papers
* Anyone who has been an author on 5 or more papers when the most recent paper is 2010 or later
* Anyone who has been an author when the most recent paper is in 2012
This gives 103 researchers, sorted by papers, last year, then name.
I haven't yet worked out how to convert the funny characters into proper letters. A later (potential) task for another day is to find a biography of each.
* Anyone who has been an author on 10 or more papers
* Anyone who has been an author on 5 or more papers when the most recent paper is 2010 or later
* Anyone who has been an author when the most recent paper is in 2012
This gives 103 researchers, sorted by papers, last year, then name.
I haven't yet worked out how to convert the funny characters into proper letters. A later (potential) task for another day is to find a biography of each.
| Author | Number Papers | First Year | Last Year |
|---|---|---|---|
| Brice A | 28 | 1999 | 2010 |
| Stevanin G | 27 | 2004 | 2011 |
| Fink JK | 23 | 1995 | 2010 |
| Crosby AH | 20 | 2001 | 2010 |
| Durr A | 19 | 2003 | 2011 |
| Santorelli FM | 16 | 2000 | 2011 |
| Klebe S | 15 | 2004 | 2012 |
| Hedera P | 15 | 1999 | 2011 |
| Nielsen JE | 15 | 1997 | 2011 |
| Hazan J | 15 | 1993 | 2007 |
| Reid E | 14 | 2002 | 2011 |
| Fontaine B | 14 | 1994 | 2010 |
| Dürr A | 14 | 1994 | 2009 |
| Schöls L | 13 | 2002 | 2012 |
| Beetz C | 13 | 2006 | 2010 |
| Klimpe S | 12 | 2002 | 2012 |
| Rouleau GA | 12 | 1989 | 2012 |
| Forlani S | 12 | 2006 | 2011 |
| Pericak-Vance MA | 12 | 1994 | 2011 |
| Proukakis C | 12 | 2002 | 2011 |
| Tessa A | 12 | 2000 | 2011 |
| Warner TT | 12 | 2001 | 2011 |
| Elleuch N | 12 | 2006 | 2010 |
| Patton MA | 12 | 2001 | 2010 |
| Hutchinson M | 12 | 1997 | 2009 |
| Schüle R | 11 | 2006 | 2012 |
| Kawarai T | 11 | 2002 | 2011 |
| Orlacchio A | 11 | 2002 | 2011 |
| Sperfeld AD | 11 | 2004 | 2010 |
| Patel H | 11 | 2001 | 2008 |
| Kassubek J | 10 | 2004 | 2012 |
| Bernardi G | 10 | 2002 | 2011 |
| Boukhris A | 10 | 2008 | 2011 |
| Shen L | 10 | 2004 | 2011 |
| Bruyn RP | 10 | 1990 | 2009 |
| Deufel T | 10 | 2002 | 2009 |
| Rainier S | 10 | 1998 | 2008 |
| Bouslam N | 10 | 2005 | 2007 |
| Kobayashi H | 10 | 1995 | 2003 |
| Bertini E | 9 | 2000 | 2011 |
| Depienne C | 9 | 2006 | 2011 |
| Rugarli EI | 9 | 2002 | 2011 |
| Blackstone C | 8 | 2005 | 2011 |
| De Michele G | 8 | 1998 | 2011 |
| Goizet C | 8 | 2006 | 2011 |
| Tang BS | 8 | 2003 | 2011 |
| Xia K | 8 | 2003 | 2011 |
| Zhao GH | 8 | 2003 | 2011 |
| Marchuk DA | 8 | 2001 | 2010 |
| Tallaksen CM | 8 | 2001 | 2010 |
| Feki I | 7 | 2007 | 2011 |
| Martinuzzi A | 7 | 2003 | 2011 |
| Sauter SM | 7 | 2004 | 2011 |
| Burgunder JM | 7 | 1998 | 2010 |
| Truchetto J | 7 | 2008 | 2010 |
| van de Warrenburg BP | 7 | 2006 | 2010 |
| Klopstock T | 6 | 2006 | 2012 |
| Bassi MT | 6 | 2003 | 2011 |
| Boespflug-Tanguy O | 6 | 2002 | 2011 |
| Braschinsky M | 6 | 2009 | 2011 |
| Gross-Paju K | 6 | 2009 | 2011 |
| Haldre S | 6 | 2009 | 2011 |
| Houlden H | 6 | 1998 | 2011 |
| Jiang H | 6 | 2004 | 2011 |
| Langer T | 6 | 2003 | 2011 |
| Mannan AU | 6 | 2006 | 2011 |
| De Jonghe P | 6 | 1999 | 2010 |
| Filla A | 6 | 1998 | 2010 |
| Lossos A | 6 | 2006 | 2010 |
| Mostacciuolo ML | 6 | 2000 | 2010 |
| Yang Y | 6 | 2000 | 2010 |
| Otto S | 5 | 2006 | 2012 |
| Criscuolo C | 5 | 2004 | 2011 |
| D'Angelo MG | 5 | 2006 | 2011 |
| Denora PS | 5 | 2006 | 2011 |
| Gaudiello F | 5 | 2004 | 2011 |
| Mundwiller E | 5 | 2009 | 2011 |
| Svenstrup K | 5 | 2007 | 2011 |
| Wood NW | 5 | 2001 | 2011 |
| Ludolph AC | 5 | 1998 | 2010 |
| Mhiri C | 5 | 2008 | 2010 |
| Siddique T | 5 | 1994 | 2010 |
| Zatz M | 5 | 2002 | 2010 |
| Ki CS | 4 | 2005 | 2012 |
| Brais B | 3 | 2006 | 2012 |
| Rioux MF | 3 | 2006 | 2012 |
| Dion PA | 2 | 2007 | 2012 |
| Dupré N | 2 | 2007 | 2012 |
| Karle K | 2 | 2009 | 2012 |
| Lee ST | 2 | 2010 | 2012 |
| Lee WY | 2 | 2005 | 2012 |
| Ahn JY | 1 | 2012 | 2012 |
| Caplan JP | 1 | 2012 | 2012 |
| Cho JW | 1 | 2012 | 2012 |
| Kohl Z | 1 | 2012 | 2012 |
| Levert A | 1 | 2012 | 2012 |
| Noreau A | 1 | 2012 | 2012 |
| Osmolak AM | 1 | 2012 | 2012 |
| Ratzka S | 1 | 2012 | 2012 |
| Szuto A | 1 | 2012 | 2012 |
| Thibodeau P | 1 | 2012 | 2012 |
| Wallenberg RB | 1 | 2012 | 2012 |
| Yoon WT | 1 | 2012 | 2012 |