Just a quick post today. I've dropped links to this blog on the three Facebook HSP groups that I joined on rare disease day and the HSP community which found this blog about a year ago. Spreading the word.
This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74.
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Thursday, 30 May 2013
Sunday, 19 May 2013
Symptoms Update - Stress & Tiredness
This last week has been quite hard. I've been busy at work and our youngest son has been ill. There have been a few interrupted nights and its been a challenge to "switch off" from work in the evening. My observation is that I think I've noticed my legs being stiffer this week, and I wonder if this is a result of either effect. A quick trawl of the papers abstracts shows that sleep and tress are not a reported phenomena (although there may be some better medical terms for either which I havent looked for)
Regular readers may recall that I've associated showing symptoms when being tired previously over the last couple of years, so maybe this is just another in a long chain of association, and another reminder of whats coming. I've not made the association with my stress levels before (and hopefully I wont have the opportunity to do so again). I must remember to try to find time to rest and relax.
I had a long train journey for work in the week and found the time to read the latest Newslink from the HSP Support Group. I like the mix of articles presented and reading both people stories and the advice and comments on different techniques and technologies which can help. I spotted that many of the exercises at the end are similar to some which we do in Pilates, which is good to find out. Perhaps I should try doing some of these other evenings in the week.
Regular readers may recall that I've associated showing symptoms when being tired previously over the last couple of years, so maybe this is just another in a long chain of association, and another reminder of whats coming. I've not made the association with my stress levels before (and hopefully I wont have the opportunity to do so again). I must remember to try to find time to rest and relax.
I had a long train journey for work in the week and found the time to read the latest Newslink from the HSP Support Group. I like the mix of articles presented and reading both people stories and the advice and comments on different techniques and technologies which can help. I spotted that many of the exercises at the end are similar to some which we do in Pilates, which is good to find out. Perhaps I should try doing some of these other evenings in the week.