This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74.
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Thursday, 30 May 2013
Facebook groups
Just a quick post today. I've dropped links to this blog on the three Facebook HSP groups that I joined on rare disease day and the HSP community which found this blog about a year ago. Spreading the word.
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