A while ago I had found a couple of videos from people with HSP on YouTube. I had bookmarked them with a view to writing a blog post about them one day. Those videos are still relevant, and you can read more about them further down the post!
However, coronavirus came to town, which meant that the Support Group was not able to hold its AGM face-to-face this year. Fortunately we were able to hold it electronically, which we did using Zoom - this was a great success - the digital AGM ranking highly in our all-time number of attendees list. My previous blog post was my usual summary of AGM post - and you can read that here: https://hspjourney.blogspot.com/2020/07/uk-hsp-support-group-agm.html
But, the story doesn't finish there, we had a quick discussion and decided to make a YouTube channel for the group, so in a few clicks I move from being someone who aspires to make a blog post about HSP content on YouTube to actually being one of those people making such content! (note - I'm using this phrase in the loosest possible sense - the AGM is a team effort). As I write the only video is the AGM recording, but we will add more videos as our digital journey develops. For those who wish to jump straight to the channel, go here: https://www.youtube.com/channel/UCkxTfcI4tKYNMYsgzVumpWA
The description of the AGM includes a few time pointers - the full list is here:
03:27 - Chair report
05:05 - Coronavirus and meeting changes
06:43 - Meetings and conferences attended
07:29 - Our new website (feel free to play!)
08:13 - Honorary members
09:05 - The David Pearce bequest
10:53 - Award presentations
12:31 - Ambassador
15:30 - Funding of research
16:10 - Help that the group needs (here!)
17:30 - Secretary report
19:02 - Membership secretary report
22:30 - Treasurer report
28:00 - Voting on reports
29:53 - Trustee elections
32:32 - Any other business
33:40 - The 2021 AGM
34:23 - Upcoming HSP presentations
So - if you wish to go and watch - go here: https://www.youtube.com/watch?v=J1yBY0wPm1o& - and dont forget to like and subscribe!!!
So, back to my original idea about writing a blog post on YouTube content - I had thought that I'm unlikely to be the only person seeking out information on YouTube about HSP, and a couple of people I know with HSP have made or been in such videos. I lost a few hours searching, clicking and watching HSP videos on YouTube, and I have started some playlists on the channel so that others searching for HSP can find them. At the moment there are three playlists, but as new videos come to light I see this changing. The first three are:
Those with HSP: https://www.youtube.com/playlist?list=PLM0_-wMVB0ncw1aG3ONLtJPL9nF_TzrKg - Various personal stories about HSP
HSP information: https://www.youtube.com/playlist?list=PLM0_-wMVB0ndjbS0gk7sHsn-Celr2LjL1 - videos which present more medical aspects of HSP or research into HSP
Potato Pants festival: https://www.youtube.com/playlist?list=PLM0_-wMVB0ncCvH6daKN2v9oMgw7Kxw5m - This festival is run in Dorset by Ian Bennett to both have a good time and to raise awareness about HSP and also raise a little money for the group. The live festival has had to take a coronavirus pause this year, so the videos of previous years seemed like a good reminder.
Finally, the channel also contains links to a load of other relevant channels, so if you're using YouTube to look for further information, then this might be a good place to start: https://www.youtube.com/channel/UCkxTfcI4tKYNMYsgzVumpWA/channels
If you can recommend any other videos or channels with an HSP connection, please drop me a line - the playlist and channels is very much a work in progress.
Enjoy your viewing!!
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