Symptoms
This table shows my symptoms changing over time, for those that like to see these things. Last update 2nd Jan 2025.Columns are:
Year: Which year this is
Symptoms: a brief summary of the years symptoms/change
Appoints: number of HSP appointments in the year
Stretches: number of and mins duration of stretches per day
Bladder: dose of bladder medication, per day
|
Year |
Symptoms |
Appoints |
Stretches |
Antispasticity |
Bladder |
|
1970's |
None |
- |
- |
- |
- |
|
1980's |
Difficulty sitting cross legged & in a canoe |
- |
- |
- |
- |
|
1990's |
Tripping on flat surfaces |
- |
- |
- |
- |
|
2000's |
Posture: knees slightly bent. Bladder frequency |
- |
- |
- |
- |
|
2008 |
- |
1 |
- |
- |
- |
|
2009 |
- |
3 |
- |
- |
- |
|
2010 |
Some tense leg muscles, Neurologist: Mild spasticity |
1 |
- |
- |
- |
|
2011 |
Some pins and needles, Foot starting to drag on floor |
0 |
- |
- |
- |
|
2012 |
Sitting/standing issues, More rapid shoe wear |
0 |
- |
- |
- |
|
2013 |
Stiffer legs, bowel and bladder urgency issues start |
0 |
- |
- |
- |
|
2014 |
Use of bannisters, mild depression, mild arm spasticity |
5 |
- |
- |
1.4mg |
|
2015 |
Getting on/off bike seat becomes more difficult |
9 |
2*3-8 |
- |
1.4mg |
|
2016 |
Legs heavier, knees together. |
8 |
2*5-11 |
- |
1.4mg>4mg |
|
2017 |
Walking slower, distance limited |
5 |
2*5-11 |
- |
4mg |
|
2018 |
Some fatigue, walking slower, distance limited |
2 |
2*5-11 |
- |
4mg |
|
2019 |
Similar - bladder, driving, stairs, sleep. |
0 |
1-2*5-11 |
- |
4mg |
|
2020 |
Walking speed & distance, bladder, bowel |
2 |
1*8-14 |
- |
4>2*2mg |
|
2021 |
Fatigue! - muscle strength |
3 |
1*15-20 |
- |
2*2>2*2.5mg |
|
2022 |
Depression, fatigue, muscle strength |
4 |
1*15-20 |
- |
2*2.5mg |
|
2023 |
Walking - start baclofen. Fatigue, depression. |
4 |
1*15-20 |
1*10mg |
2*2.5mg |
|
2024 |
Start using walking poles. Stop Anti-D |
4 |
1*20-25 |
1*10mg |
2*2.5mg |
My first anti spasticity medication is baclofen. My bladder medication changed in 2016, 2020 and 2021. During 2019 I dropped going from two sets of daily stretches to one set per day.
Appointments
This table shows my HSP appointments.The other details column gives details of the "other" appointments which I have had. A dash means that all appointments are covered by the other columns.
|
GP |
Neuro |
Physio |
Orthotic |
Other |
Other Details |
|
|
2008 |
1 |
|||||
|
2009 |
3 |
Genetics |
||||
|
2010 |
1 |
|||||
|
2011 |
||||||
|
2012 |
||||||
|
2013 |
||||||
|
2014 |
2 |
1 |
2 |
Stress, Bowel |
||
|
2015 |
0 |
0 |
5 |
3 |
1 |
Bowel |
|
2016 |
1 |
1 |
3 |
1 |
2 |
Bowel, Joint Physio/Orthotic |
|
2017 |
1 |
0 |
2 |
0 |
2 |
Bladder, MRI |
|
2018 |
1 |
1 |
0 |
0 |
0 |
- |
|
2019 |
0 |
0 |
0 |
0 |
0 |
- |
|
2020 |
1 |
1 |
0 |
0 |
0 |
- |
|
2021 |
1 |
1 |
1 |
0 |
0 |
- |
|
2022 |
0 |
1 |
0 |
0 |
3 |
GP - AntiD |
|
2023 |
1 |
1 |
0 |
0 |
2 |
GP - Baclofen, Sign off work |
|
2024 |
0 |
0 |
2 |
2 |
0 |
- |
Health Data
|
Steps (k/day) |
Active (Min/day) |
Sleep (h:m/day) |
Alcohol (unit/wk) |
Weight (kg) |
|
|
2017 |
12.4 |
102 |
06:12 |
12.7 |
86.0 |
|
2018 |
11.0 |
106 |
06:06 |
12.8 |
86.7 |
|
2019 |
13.5 |
120 |
05:50 |
23.3 |
88.2 |
|
2020 |
13.4 |
131 |
05:55 |
16.6 |
85.5 |
|
2021 |
10.6 |
101 |
06:05 |
13.9 |
84.9 |
|
2022 |
8.6 |
62 |
06:14 |
11.6 |
93.6 |
|
2023 Q1 |
9.6 |
29 |
06:20 |
6.3 |
94.3 |
|
2023 Q2 |
9.8 |
35 |
05:55 |
17.6 |
95.7 |
|
2023 Q3 |
9.0 |
29 |
06:04 |
19.3 |
96.3 |
|
2023 Q4 |
8.7 |
30 |
06:13 |
18.6 |
94.6 |
|
2024 Q1 |
10.8 |
37 |
06:04 |
12.3 |
93.5 |
|
2024 Q2 |
11.6 |
50 |
05:56 |
20.6 |
93.7 |
|
2024 Q3 |
9.6 |
42 |
06:02 |
20.3 |
92.8 |
|
2024 Q4 |
8.3 |
36 |
05:59 |
21.4 |
91.8 |
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