Pages

▼
Friday, 21 June 2013

AGM2013: Looking After Yourself (Liz Redmond)

›
Here is the first of four posts covering the presentations given at the UK HSP Support Group AGM on 15th June. Liz Redmond is a neurogenet...
Monday, 17 June 2013

UK HSP Support group 2013 AGM

›
Yesterday I went to the AGM of the UK HSP support group in Warwickshire. After the AGM there were 4 presentations by different specialists,...
Thursday, 30 May 2013

Facebook groups

›
Just a quick post today. I've dropped links to this blog on the three Facebook HSP groups that I joined on rare disease day and the HSP ...
Sunday, 19 May 2013

Symptoms Update - Stress & Tiredness

›
This last week has been quite hard. I've been busy at work and our youngest son has been ill. There have been a few interrupted nights a...
1 comment:
Friday, 26 April 2013

HSP Research - Further Papers

›
This evening I have re-searched the link to see what else has been published since my previous update on papers in August 2012. Another 63 p...
2 comments:
Sunday, 21 April 2013

Babinski’s sign - The 'tickle' test.

›
As part of my trawl of the symptoms of HSP, today I'm exploring Babinski's Sign, which seems also to be called Babinski's Reflex...
Tuesday, 26 March 2013

Symptoms Update - Stiffness

›
A few more months have passed since I last did a symptoms update. The 'problem' with a condition that acts slowly is trying to ident...
Tuesday, 12 March 2013

Introduction to cell biology

›
When I met Dr Reid at Addenbrookes the other week he started to explain cell biology, and made me realise there's a large gap in my know...
Thursday, 28 February 2013

Rare Disease Day

›
Well, today is rare disease day ( http://www.rarediseaseday.org/ ), and I thought it was time to move a bit further out from the shadows and...
Friday, 15 February 2013

HSP Research - Trawl Update

›
Time ticks by. I've been reading abstracts and trying to categorise them. Today marks the completion of the 2012 papers retrieved so f...