Pages

▼
Monday, 26 August 2013

Symptoms update - tide turning?

›
I wonder if I'm on the cusp of the start of the onset of significant symptoms. In the last few weeks I've been feeling that my legs ...
Saturday, 17 August 2013

Opportunity to influence - Disaster survey for disabled people

›
Following on from Dr Nairs presentation at the  HSP Support Group AGM, here is an opportunity to influence thinking. The UN  Office for ...
Tuesday, 30 July 2013

AGM2013: Promoting Walking Ability (Alison Clarke)

›
This post is the fourth and final post about the UK HSP Support Group AGM. Alison Clarke is a physiotherapist from the Northern General Hos...
Friday, 12 July 2013

AGM2013: Research Update (Dr Siva Nair)

›
The third paper presented was a research update on treatment, given by Dr Krishnan Padmakumari Sivaraman Nair of the Royal Hallamshire Hosp...
Tuesday, 2 July 2013

AGM2013: Getting the Correct Diagnosis (Prof Henry Houlden)

›
This is the second post covering the presentations given at the UK HSP Support Group AGM on 15th June. Prof. Henry Houlden works at the Na...
1 comment:
Friday, 21 June 2013

AGM2013: Looking After Yourself (Liz Redmond)

›
Here is the first of four posts covering the presentations given at the UK HSP Support Group AGM on 15th June. Liz Redmond is a neurogenet...
Monday, 17 June 2013

UK HSP Support group 2013 AGM

›
Yesterday I went to the AGM of the UK HSP support group in Warwickshire. After the AGM there were 4 presentations by different specialists,...
Thursday, 30 May 2013

Facebook groups

›
Just a quick post today. I've dropped links to this blog on the three Facebook HSP groups that I joined on rare disease day and the HSP ...
Sunday, 19 May 2013

Symptoms Update - Stress & Tiredness

›
This last week has been quite hard. I've been busy at work and our youngest son has been ill. There have been a few interrupted nights a...
1 comment:
Friday, 26 April 2013

HSP Research - Further Papers

›
This evening I have re-searched the link to see what else has been published since my previous update on papers in August 2012. Another 63 p...
2 comments: