Support Groups

OK, my first linky post...

There are a number of support groups and organisations that can help people with the condition:

UK: http://www.hspgroup.org/
Europe: http://www.hsp-info.eu/
USA: http://www.sp-foundation.org/
Australia: http://www.hspersunite.org.au/
Germany: http://www.hsp-info.de/

I've limited myself to those in English, and this is the result of only a brief web trawl. It is my intention to add links to medical and research sites in the future, but I'm happy to expand this list and would welcome links to any other support groups, in any language.

Some commonality

I was chatting with my mum the other day. She had been to see her physiotherapist, and was telling me about some of the exercises that she had been recommended to do - stomach crunches. This turns out to be quite similar to some of the exercises I do at Pilates, particularly going into imprint.

Whilst I'm pleased to find out that we're getting some degree of commonality from fairly separate areas (in different parts of the country too), I cant decide if I am surprised at this commonality or not.