OK, my first linky post...
There are a number of support groups and organisations that can help people with the condition:
UK: http://www.hspgroup.org/
Europe: http://www.hsp-info.eu/
USA: http://www.sp-foundation.org/
Australia: http://www.hspersunite.org.au/
Germany: http://www.hsp-info.de/
I've limited myself to those in English, and this is the result of only a brief web trawl. It is my intention to add links to medical and research sites in the future, but I'm happy to expand this list and would welcome links to any other support groups, in any language.
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