HSP Support Group 2021 AGM

This weekend was the 2021 AGM for the UK HSP Support Group, which as readers might be aware, I am the chair of.

The AGM was held by Zoom again, and we had about 40 members watching. Like last year we ran the AGM on one day with the presentations being run on different weekends over the summer.

Anyone who would like to watch the AGM is welcome to do so, on the groups YouTube channel.

AGM: https://www.youtube.com/watch?v=JGEET9D45rU

Channel: https://www.youtube.com/c/UKHSPHereditarySpasticParaplegia

Highlights for me were hearing our award winners telling us about their awards. It was really good to hear these stories and what people feel about helping the group.

If there are people reading this who dont know about HSP I took a few minutes right at the the start if the AGM to give a brief overview, so people could click and watch this if they wanted.

My other main call out is for help for the group - I covered this at the AGM with four main things for this year:

• New treasurer - our current treasurer is standing down at our next AGM
• New secretary - our current secretary is standing down at our next AGM
• New chair of meetings committee - our current chair is standing down
• More trustees - we could do with some alterative/more diverse views at our meetings

There is a page with this and other details here: https://hspgroup.org/want-to-be-able-to-help-the-group/ or any interested parties can drop me a line here.

The dates for our summer presentations are:

• Henry Houlden – Sat 17th July 15:00
• The spectrum of HSP genes in the UK and building a bioresource for future trials

• Coralie Seary – Sat 31st July 14:00
• Falls prevention and management

• Ray Owen – Sat 28th August 15:00
• Mindfulness, acceptance and values

The most exciting thing, however, was the interest for our newest event - can the group get virtually from Lands End to John O'Groats? The final details for this are just being finalised, it should be really good!