Hello all,
The end of the month is fast approaching, which means that its just for me to slide in a short post for my second September post. Those who like to look forward can note that the two October posts should be the write up of the 3rd AGM presentation from the UK support group, and the launch of my 2021 HSP survey. Unfortunately neither of these are quite ready today!
So, here are details of a very useful resource from the Multiple Sclerosis Trust. This is a similar group to the HSP support group, finding information and providing support to people with MS in the UK.
They have prepared an A to Z of things relevant to MS: https://mstrust.org.uk/a-z. The list contains details of treatments, symptoms and common terms. MS is one of the conditions which is often misdiagnosed on peoples journey to HSP, and there is a good overlap in symptoms between HSP and MS.
So, with the caveat that the advice may not be completely relevant, you can look up the more common treatments used for HSP (Baclofen, Botox, Tizanidine, Gabapentin, etc. etc.) and you can find out where the treatment comes from, what it does and doesn't do. Remember the What does XXXX do for MS may not be the same as what it would do for HSP.
There are descriptions of the MS symptoms like Walking Difficulties, Fatigue, Pain, Bladder/Bowel problems (and so on) and you can get an overview of these. As noted, there is a large overlap of symptoms between MS and HSP, but there are also some differences.
Overall, there is a lot to look at. Being a UK organisation the details on benefits and accessing specialist services are from a UK perspective.
Enjoy browsing!
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