This blog records my journey to Hereditary Spastic Paraplegia (HSP, also known as Familial Spastic Paraparesis or FSP). I was diagnosed with SPG4 in 2009 when my wife became pregnant with our first child. I currently wear insoles, do daily stretches and weekly Pilates. I take medication for my bladder. I tweet about HSP, RareDisease and other things @munkee74.
I now have the next data point for my ferrule sequence!
I changed to new ferrules at the end of July, meaning these ferrules lasted some 4 months (from late March). On the shoe front, my shoes are still wearing in the same style, but slower. I estimate I'm at about 8 months down on these shoes. There are many variables in play with shoes (as noted here: https://hspjourney.blogspot.com/2024/10/symptoms-update-new-shoes.html)
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